In order to assess the improvements in your child during the treatment, it is important to have tools for regular evaluation.
Below are links for the download of two questionnaires.
The first one is for qualitative assessment - every month you give a short description of the child's condition for every of the given categories and compare to your previous answers. This questionnaire was developed by our group of doctors.
The second questionnaire is for quantitative assessment. It is divided into three parts:
1. CARS-2 or Childhood Autism Rating Scale-2 (Schopler et al. 2010), which is the upgraded version of the CARS, the instrument for the assessment of the severity of the autistic symptoms in children. The questionnaire consists of 15 questions about autism symptoms, which are rated on a 4-point scale with an option of choosing 0.5 interval points. The sum of the points is interpreted in the following way: 0-30 – no autism; 30-36 – mild to moderate autism; 36 to 60 – severe autism.
2. PedsQL or Pediatric Quality of Life Inventory (Varni et al. 1999). This questionnaire is used to assess health-related quality of life in children. It can be used for the evaluation in both healthy children and in children with acute and chronic health conditions. It consists of 21 questions, where the severity of physiological, psychological, emotional, and school problems are rated by parents on a 5-point scale, where 0 – is the absence of problem and 4 – always a problem. The 0-4 scale items on a 0-100 scale are as follows: 0=100, 1=75, 2=50, 3=25, 4=0. The results were calculated for physical, psychological, and overall functionality. The scores were between 0 to 100, and 0 indicates the lowest functionality and 100 – the highest functionality.
3. Caregiver Strain Questionnaire (Brannan et al. 1997) is used to assess the quality of life of parents who bring up children with emotional disturbances. Parents’ quality of life reflects the severity of a child’s disorder, so in order to additionally assess all the dynamics, this questionnaire was also used. It consists of 21 questions, each assessing strains in terms of the extent to which certain occurrences or events (e.g., missed work, financial strain, trouble with neighbors) or feelings (e.g., sadness, guilt, worry) have been a problem as a result of the child’s emotional or behavioral problems. The response options range from one (not at all a problem) to five (very much a problem) on a Peabody Treatment Likert-type scale. With the purpose of clarity in the results section, the scores were recalculated for a 0-100 score diapason, where 0 indicated the lowest possible quality of life (subjective) and 100 indicated the highest possible quality of life (subjective).
The quantitative approach allows comparing the scores after each treatment cycle.